Sorry it took me a couple of days to get on here and thank you all for your support and participation last week for MS Awareness Week. I am so touched from all of the things you guys did to join the movement. Here are some of the highlights of what you did last week:
Joined "Nicole's Angels" MS Walk Team....
Cecile Ashby, Melissa Gattis, Liz Ginn, Natalie Hodge, Kiley Muthig, RoseAnn Rapp, Mark Reagan, Melissa Reagan, Rene' Reagan, Renee Reagan (Courtney, I know you said you signed up, but you're still not on the roster, you should probably check on that)
And some of you have already made donations and/or raised donations....
RoseAnn Rapp, Renee Reagan, Kathy Alexander, Karen Brown Hutcheson, Brenda Mitchiner
Karen Brown Hutcheson lives all the way in Chicago, IL and found out what she could do to raise the awareness in her area. She's going to do the Bike MS: Tour de Farms Ride 2008 for the National MS Society's Greater Illinois Chapter. THANKS KAREN!!
I know I didn't name everyone because most of you participated ALL week by doing the daily tasks: signing up to join the movement, writing letters to Congress, signing up for a walk or bike event, donating to the NMSS, and most of all spreading the word. And I can't thank you enough!
I really wasn't sure what kind of response I would get after e-mailing you EVERY day for one whole week. I thought I would probably drive you nuts, but most everyone responded WONDERFULLY! I've never felt so supported:)
I got so wrapped up in all of the activities for MS Awareness Week I didn't even realize Sunday, March 16th was the 1 year anniversary since I was officially diagnosed with Multiple Sclerosis. Can ya'll believe that???!!!
"I would thank you from the bottom of my heart, but for you my heart has no bottom."
Tuesday, March 18, 2008
Sunday, March 16, 2008
Day 7: Suport the Society
It's the last day of MS Awareness Week!! And you know we were going to ask you for money at some point:) Well, that's today's task...Support the Society: Every donation moves us closer to a world free of MS. I made my donation to the National MS Society!!!
There's a couple of things you can do as far as donating:
Option 1: Go to this website and either write a check and mail it to the address given or you can just donate online: http://www.nationalmssociety.org/donate/index.aspx
Option 2: Go to my homepage for the MS Walk in September and donate through me and my team, Nicole's Angels:
http://main.nationalmssociety.org/goto/Nicole.Grubbs08
Option 3: A good friend of mine from college is riding in the Dallas Sam's Club MS150 and he's dedicated the ride to me. His team name is Team Auwesome and they're even going to wear patches with my name on them!!! He's super sweet and is trying to raise money for the NMSS, check out his site and donate through him:
http://www.ms150.org/dallas/donate/donate.cfm?id=217410
It doesn't matter how you go about it, just please make some sort of a donation to the NMSS. Even if it's just $20, that $20 can help bring us closer to a cure!! I thank you in advance for your generosity and support!
This is your last task!! I will try to post tomorrow with all of the wonderful things you guys did throughout the week. I thank you all for everything and for all of your support:)
There's a couple of things you can do as far as donating:
Option 1: Go to this website and either write a check and mail it to the address given or you can just donate online: http://www.nationalmssociety.org/donate/index.aspx
Option 2: Go to my homepage for the MS Walk in September and donate through me and my team, Nicole's Angels:
http://main.nationalmssociety.org/goto/Nicole.Grubbs08
Option 3: A good friend of mine from college is riding in the Dallas Sam's Club MS150 and he's dedicated the ride to me. His team name is Team Auwesome and they're even going to wear patches with my name on them!!! He's super sweet and is trying to raise money for the NMSS, check out his site and donate through him:
http://www.ms150.org/dallas/donate/donate.cfm?id=217410
It doesn't matter how you go about it, just please make some sort of a donation to the NMSS. Even if it's just $20, that $20 can help bring us closer to a cure!! I thank you in advance for your generosity and support!
This is your last task!! I will try to post tomorrow with all of the wonderful things you guys did throughout the week. I thank you all for everything and for all of your support:)
Saturday, March 15, 2008
Day 6: Make your Mark
Just finished my task for Day 6, Make your mark: Make your mark against MS and share it with the world, or tell your story on Face of MS. I told my story on the Face of MS. Here's the website:
http://www.faceofms.org/
It's really easy, you just go to the website, enter some information about yourself, and tell your story of how MS has effected your life. You don't have to have MS in order for it to effect your life. You can tell a story about someone you know that has MS....like me:) or maybe someone else you know.
It takes about a week for them to get your story up and running online, so you won't see mine or your's yet, but I'll be looking for everyone's next week!!!
http://www.faceofms.org/
It's really easy, you just go to the website, enter some information about yourself, and tell your story of how MS has effected your life. You don't have to have MS in order for it to effect your life. You can tell a story about someone you know that has MS....like me:) or maybe someone else you know.
It takes about a week for them to get your story up and running online, so you won't see mine or your's yet, but I'll be looking for everyone's next week!!!
Friday, March 14, 2008
Day 5: Find Opportunities to Volunteer
TGIF!! Today's task is really important.....Find Opportunities to Volunteer.
I've already signed up for mine! I'm traveling to La Grange, TX on Saturday, April 12th to help Continental Airlines serve lunch and dinner to the riders in the BP MS150 during their pit stops. Doug and I are trying to find somewhere to stay the night so we can also serve breakfast Sunday morning before the riders start their last leg of the ride. The BP MS150 is a HUGE event, so I'm sure they need a lot more volunteers to help things run smoothly. And you don't necessarily have to go to La Grange....it starts in Houston Saturday morning, the riders stay the night in La Grange, and finish in Austin on Sunday. So, you have 3 different locations to choose from to volunteer. But, you don't have to volunteer at the BP MS150 there are plenty of other opportunities throughout the year!
Here's a link to the National MS Society's website to check out other opportunities to volunteer. Here's the Lone Star Chapter which is based out of Houston:
http://txh.nationalmssociety.org/site/PageServer?pagename=TXH_vol_homepage
Here's the link to the NMSS main page in case you're not in the Houston area you can check out where your local chapter is located and what volunteer opportunities are available near you:
http://www.nationalmssociety.org/find-a-chapter/index.aspx
Let me know what you guys plan to do. If you find something you want to do to volunteer and have no one join you, let me know and I'll be there!!
Hope everyone has a great weekend! Expect 2 more posts from me with Saturday and Sunday's tasks, it's the last two!!
"There aren't enough days in the weekend." ....isn't that the truth!!! :)
I've already signed up for mine! I'm traveling to La Grange, TX on Saturday, April 12th to help Continental Airlines serve lunch and dinner to the riders in the BP MS150 during their pit stops. Doug and I are trying to find somewhere to stay the night so we can also serve breakfast Sunday morning before the riders start their last leg of the ride. The BP MS150 is a HUGE event, so I'm sure they need a lot more volunteers to help things run smoothly. And you don't necessarily have to go to La Grange....it starts in Houston Saturday morning, the riders stay the night in La Grange, and finish in Austin on Sunday. So, you have 3 different locations to choose from to volunteer. But, you don't have to volunteer at the BP MS150 there are plenty of other opportunities throughout the year!
Here's a link to the National MS Society's website to check out other opportunities to volunteer. Here's the Lone Star Chapter which is based out of Houston:
http://txh.nationalmssociety.org/site/PageServer?pagename=TXH_vol_homepage
Here's the link to the NMSS main page in case you're not in the Houston area you can check out where your local chapter is located and what volunteer opportunities are available near you:
http://www.nationalmssociety.org/find-a-chapter/index.aspx
Let me know what you guys plan to do. If you find something you want to do to volunteer and have no one join you, let me know and I'll be there!!
Hope everyone has a great weekend! Expect 2 more posts from me with Saturday and Sunday's tasks, it's the last two!!
"There aren't enough days in the weekend." ....isn't that the truth!!! :)
Thursday, March 13, 2008
Appointment with Dr. Rivera
I saw Dr. Rivera, my MS doctor, yesterday. He wanted to discuss my eyes and my vibrating tailbone.
He said the vibrations in my tailbone could have been a small relapse. But, because it went away on it's own, he wants to treat it conservatively for now and leave it be. If it starts up again I'm supposed to call him and he may want to do another MRI to see if any new lesions have formed.
As for my eyes, he is going to discuss my case with Dr. Tang, the neuro-opthamologist who referred me to my current retina specialist that has me on the drops. He's going to let Dr. Tang know what's going on with me and see what her thoughts are on being on the drops for so long. Depending on what Dr. Tang says, I may need to see her again or she may want to refer me to another retina specialist to get a second opinion or we may just leave it be and keep on doing what we're doing now. Dr. Rivera did say though that it's pretty common for MS patients with uveitis to be on some sort of eye treatment, usually drops, indefinitely. So, I'll let you all know once Dr. Rivera gets back to me regarding his talk with Dr. Tang.
All in all though it was a pretty good appointment. I don't have to see him again for another year, so next March, unless something happens between now and then.
He said the vibrations in my tailbone could have been a small relapse. But, because it went away on it's own, he wants to treat it conservatively for now and leave it be. If it starts up again I'm supposed to call him and he may want to do another MRI to see if any new lesions have formed.
As for my eyes, he is going to discuss my case with Dr. Tang, the neuro-opthamologist who referred me to my current retina specialist that has me on the drops. He's going to let Dr. Tang know what's going on with me and see what her thoughts are on being on the drops for so long. Depending on what Dr. Tang says, I may need to see her again or she may want to refer me to another retina specialist to get a second opinion or we may just leave it be and keep on doing what we're doing now. Dr. Rivera did say though that it's pretty common for MS patients with uveitis to be on some sort of eye treatment, usually drops, indefinitely. So, I'll let you all know once Dr. Rivera gets back to me regarding his talk with Dr. Tang.
All in all though it was a pretty good appointment. I don't have to see him again for another year, so next March, unless something happens between now and then.
Day 4: Spread the Word
We're half way through MS Awareness Week, only three more days after today!! Today's task is the easiest of all....Spread the Word. All you have to do is e-mail your friends and family to let them know it's MS Awareness Week. In fact, I've sent out an e-mail to most of you already to forward on to everyone you know!! Every voice matters!!
I know it's not easy to understand what someone with MS may feel like. Since today's task is to spread the word, I want you guys to check out an awesome video that will help you get in the "shoes" of someone with MS and maybe understand what MS patients go through at times or even on a daily basis for some. It's kind of corny at first, but watch the whole thing, the best part is the second half. Just turn your sound up and click the play symbol in the center of the video screen.
http://www.youtube.com/watch?v=6oraM8IF2Gc
To check out more videos from the "Moving Forward Film Festival" click on the link below (there are 4 others that are ALL really good):
http://www.nationalmssociety.org/online-community/film-festival/index.aspx
One of the biggest difficulties in dealing with MS is trying to explain to your friends and family how you feel. There's really no way for them to understand completely, but hopefully the videos can help a little. Let me know what you guys thought of them!
Once again, I've made it super easy for you guys to complete the task for the day:) And thanks again for all of your participation. I have a good feeling Nicole's Angels will be even BIGGER this year!!
Until tomorrow.....
"Spread the Word."
I know it's not easy to understand what someone with MS may feel like. Since today's task is to spread the word, I want you guys to check out an awesome video that will help you get in the "shoes" of someone with MS and maybe understand what MS patients go through at times or even on a daily basis for some. It's kind of corny at first, but watch the whole thing, the best part is the second half. Just turn your sound up and click the play symbol in the center of the video screen.
http://www.youtube.com/watch?v=6oraM8IF2Gc
To check out more videos from the "Moving Forward Film Festival" click on the link below (there are 4 others that are ALL really good):
http://www.nationalmssociety.org/online-community/film-festival/index.aspx
One of the biggest difficulties in dealing with MS is trying to explain to your friends and family how you feel. There's really no way for them to understand completely, but hopefully the videos can help a little. Let me know what you guys thought of them!
Once again, I've made it super easy for you guys to complete the task for the day:) And thanks again for all of your participation. I have a good feeling Nicole's Angels will be even BIGGER this year!!
Until tomorrow.....
"Spread the Word."
Wednesday, March 12, 2008
Day 3: Sign Up for a local Walk MS or Bike MS Event
It's Day 3 of MS Awareness Week and you guys are doing AWESOME so far!! I'm so excited with all of the e-mails I've recieved letting me know what you guys are doing to participate this week. Quite a few of you e-mailed Congress yesterday to encourage the increase of funds for MS research, you guys ROCK!!
Today's task is SUPER easy!! Sign up for a local Walk MS or Bike MS Event. "Nicole's Angels" are back!!!! I've already set up the page for the MS Walk in Kemah, it's not until September 20th, but it's never too early to sign up. It's free to register for the walk, but you can make your donation now if you want to or you can wait....either way you know I'll get it out of you :) But definitely sign up today to walk!! We had an awesome turnout last year, in fact we had the largest team there! And we raised a whopping $4,529.00!! So, this year I raised the goal to $5000.00, I'll probably increase it though because I know we can do it!! Feel free to start your fundraising now!! If you're not sure whether or not you want to walk with us, check out the pics on my blog I posted on September 10, 2007 to see how much fun we had last year!!
Here's the link to my MS Walk page so you can sign up, feel free to invite your friends and family to walk too....the more the merrier!!
http://main.nationalmssociety.org/goto/Nicole.Grubbs08
If you don't want to walk, then find a BIKE MS Event to ride in. Here's a link to all of the upcoming walk and bike events: http://txh.nationalmssociety.org/site/PageServer?pagename=TXH_events_homepage
I can't wait to check back at the end of the day to see how many teammates have already joined me!! Thanks for your support:)
"Walking gets the feet moving, the blood moving, the mind moving. And movement is life. " ~Carrie Latet
Today's task is SUPER easy!! Sign up for a local Walk MS or Bike MS Event. "Nicole's Angels" are back!!!! I've already set up the page for the MS Walk in Kemah, it's not until September 20th, but it's never too early to sign up. It's free to register for the walk, but you can make your donation now if you want to or you can wait....either way you know I'll get it out of you :) But definitely sign up today to walk!! We had an awesome turnout last year, in fact we had the largest team there! And we raised a whopping $4,529.00!! So, this year I raised the goal to $5000.00, I'll probably increase it though because I know we can do it!! Feel free to start your fundraising now!! If you're not sure whether or not you want to walk with us, check out the pics on my blog I posted on September 10, 2007 to see how much fun we had last year!!
Here's the link to my MS Walk page so you can sign up, feel free to invite your friends and family to walk too....the more the merrier!!
http://main.nationalmssociety.org/goto/Nicole.Grubbs08
If you don't want to walk, then find a BIKE MS Event to ride in. Here's a link to all of the upcoming walk and bike events: http://txh.nationalmssociety.org/site/PageServer?pagename=TXH_events_homepage
I can't wait to check back at the end of the day to see how many teammates have already joined me!! Thanks for your support:)
"Walking gets the feet moving, the blood moving, the mind moving. And movement is life. " ~Carrie Latet
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